Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry

Rheumatic Joint DiseaseChildren's healthBones and joints

What this study is

Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.

Study details

Sponsor: Duke University
Conditions: Rheumatic Joint Disease
Enrolling: 20,000 people
Starts: 2015-07
Est. completion: 2028-12
Record: View on ClinicalTrials.gov ↗

Study locations (82)

71 open

University of Alabama at Birmingham
Birmingham, Alabama, United States
- Livie Timmerman · Contact205-625-9140 liviet09@uab.edu
- Melissa Mannion, MD · Principal investigator
- John Bridges, MD · Sub-investigator
- Randy Cron, MD, PhD · Sub-investigator
- Brittany Huynh, MD · Sub-investigator
- Carolyn Lacy, RN · Sub-investigator
- Annelle Reed, CRNP · Sub-investigator
- Eileen Rife, MD · Sub-investigator
- Emily Smitherman, MD · Sub-investigator
- Matthew Stoll, MD, PhD · Sub-investigator
- Bethany Walker, CRNP · Sub-investigator
Recruiting
Phoenix Children's Hospital
Phoenix, Arizona, United States
- Sabrina Gorry · Contact602-933-3822 sgorry@phoenixchildrens.com
- Kaleo Ede, MD · Principal investigator
- Michael Shishov, MD · Sub-investigator
- Nikita Goswami, MD · Sub-investigator
- Geoffrey Thiele, MD · Sub-investigator
Recruiting
Children's Hospital of Los Angeles
Los Angeles, California, United States
- Ana Cancino · Contact323-361-5958 ancabrera@chla.usc.edu
- Katherine Marzan, MD · Principal investigator
- Diane Brown, MD · Sub-investigator
- Michal Cidon, MD · Sub-investigator
- Sara Haro, MD · Sub-investigator
- Iris Reyhan, MD · Sub-investigator
Not yet recruiting
Mattel Children's Hospital at University of California Los Angeles
Los Angeles, California, United States
- Alexis Stephens · Contact310-825-7257 AVStephens@mednet.ucla.edu
- Deborah McCurdy, MD · Principal investigator
- Alice Chang-Hoftman, MD · Sub-investigator
Recruiting
Stanford University Medical Center
Palo Alto, California, United States
- Aihua Zhu · Contact650-384-5917 azhu1@stanford.edu
- Joyce Hsu, MD · Principal investigator
- Imelda Balboni, MD · Sub-investigator
- Quoc Du, NP · Sub-investigator
- Arianne Peters, MD · Sub-investigator
- Tzielan Lee, MD · Sub-investigator
- Rajdeep Pooni, MD · Sub-investigator
- Adrienne Ramirez, MSN, RN · Sub-investigator
- Vivian Saper, MD · Sub-investigator
- Cristina Saez, MD · Sub-investigator
- Mekhla Varma, MD · Sub-investigator
- Siva Kasinathan, MD, PhD · Sub-investigator
- Amritha Yellamilli, MD, PhD · Sub-investigator
Recruiting
Rady Children's Hospital San Diego
San Diego, California, United States
- Nairobi Lindsey · Contact858-966-8082 nlindsey@ucsd.edu
- Johanna Chang, MD · Principal investigator
- Robert Sheets, MD · Sub-investigator
- Aviya Levy, MD · Sub-investigator
- Omkar Phadke, MD · Sub-investigator
Recruiting
University of California at San Francisco Medical Center
San Francisco, California, United States
- Zilan Zheng · Contact415-353-1301 Zilan.Zheng@ucsf.edu
- Susan Kim, MD · Principal investigator
- William Bernal, MD · Sub-investigator
- Erica Lawson, MD · Sub-investigator
- Nicole Ling, MD · Sub-investigator
- Jessica Neely, MD · Sub-investigator
- Tara Valcarel, NP · Sub-investigator
- Emily von Scheven, MD · Sub-investigator
- Michael Waterfield, MD, PhD · Sub-investigator
- Taylor LaFlam, MD, PhD · Sub-investigator
- Mercy Joyce, MD · Sub-investigator
- Geraldina Lionetti, MD · Sub-investigator
- Andy Nguyen, FNP · Sub-investigator
- Carolina Tamashiro, MD · Sub-investigator
- Snehaja Yadlapati, MD · Sub-investigator
Recruiting
The Children's Hospital of Colorado
Aurora, Colorado, United States
- Ana Aristiguieta · ContactAna.Aristiguieta@childrenscolorado.org
- Katharine Moore, MD · Principal investigator
- Adam Bartholomeo, MD · Sub-investigator
- Rob Fuhlbrigge, MD, PhD · Sub-investigator
- Clara Lin, MD · Sub-investigator
- Holly Reid, RN, PNP · Sub-investigator
- Joel Shirley, DO · Sub-investigator
- Jennifer Soep, MD · Sub-investigator
- Michelle Sutter, RN, PNP · Sub-investigator
- Jessica Bloom, MD · Sub-investigator
- Mitchell Clingo · Sub-investigator
- Lyndsey Cole, MD · Sub-investigator
- Samuel Lazaroff, MD · Sub-investigator
- Carla Levin, MD · Sub-investigator
- Katherine Nowicki, MD · Sub-investigator
- Kathryn Scheinberg, MD · Sub-investigator
- Indira Sriram, MD · Sub-investigator
- Gabriel Tarshish, MD · Sub-investigator
Recruiting
Connecticut Children's Medical Center
Hartford, Connecticut, United States
- Jennifer Twachtman-Bassett · ContactJtwachtman@connecticutchildrens.org
- Barbara Edelheit, MD · Principal investigator
- Blaine Lapin, MD · Sub-investigator
- Heather Tory, MD · Sub-investigator
- Jessica Fennell, MD · Sub-investigator
Recruiting
Childrens National Medical Center
Washington D.C., District of Columbia, United States
- Katie Dunnock · Contact202-476-5746 kdunnock@childrensnational.org
- Tova Ronis, MD · Principal investigator
- Rachael Connor, NP · Sub-investigator
- Matthew Eremita, MD · Sub-investigator
- Abigail Bosk, DO · Sub-investigator
Recruiting
University of Florida - Shand's Children's Hospital
Gainesville, Florida, United States
- Melissa Lingis · Contact352-294-8556 Melissa.Lingis@peds.ufl.edu
- Leandra Woolnough, MD · Principal investigator
- Christian Oliveros, MD · Sub-investigator
- Renee Frances Modica, MD · Sub-investigator
- Heather Bell-Brunson, APRN · Sub-investigator
- Leeandra Cleaver, MD · Sub-investigator
Recruiting
Nemours Children's Hospital
Orlando, Florida, United States
- Micah Reisner · Contact407-567-6206 Micah.Reisner@nemours.org
- Mary Toth, MD · Principal investigator
- Traci Futch-West, NP · Sub-investigator
- Samira Nazzar Romero, MD · Sub-investigator
- Shalini Bajaj, MD · Sub-investigator
Recruiting
Johns Hopkins All Children's Hospital
St. Petersburg, Florida, United States
- Jasmine Niazi · Contact727-767-6949 jniazi1@jh.edu
- Lilliana Barillas-Arias, MD · Principal investigator
- Mary Brothers, APRN · Sub-investigator
- Laisa Santiago, MD · Sub-investigator
- Amanda Schlefman, DO · Sub-investigator
- Ann Marie Szymanski, MD · Sub-investigator
Recruiting
Emory Children's Center
Atlanta, Georgia, United States
- Lori Ponder · Contact404-727-3583 laponde@emory.edu
- Sampath Prahalad, MD · Principal investigator
- Cynthia Manos, MD · Sub-investigator
- Elaine Flanagan, MD · Sub-investigator
- Kelly Rouster-Stevens, MD · Sub-investigator
- Ellen Jan Lao Go, MD · Sub-investigator
Recruiting
Georgia Regents University Medical Center
Augusta, Georgia, United States
- Heidi Stapp · Contact706-721-7699 hstapp@augusta.edu
- Julisa Patel, MD · Principal investigator
Recruiting
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, United States
- Tyler Sorenson · Contact312-227-6276 tsorensen@luriechildrens.org
- Marisa Klein-Gitelman, MD · Principal investigator
- Deirdre De Ranieri, MD · Sub-investigator
- Megan Hiskey, APN · Sub-investigator
- Brian Nolan, MD · Sub-investigator
- Pooja Patel, DO · Sub-investigator
- Angela Chun, MD · Sub-investigator
Recruiting
University of Chicago Medical Center
Chicago, Illinois, United States
- Sydni Hill · ContactSydni.Hill@bsd.uchicago.edu
- Melissa Tesher, MD · Principal investigator
- Cuoghi Edens, MD · Sub-investigator
- Linda Wagner-Weiner, MD · Sub-investigator
- Joseph McDonald, MD · Sub-investigator
- Carolyn Zic, NP · Sub-investigator
Recruiting
Indiana University School of Medicine
Indianapolis, Indiana, United States
- Elly Duncan · Contactemckinse@iu.edu
- Stacey Tarvin, MD · Principal investigator
- Susan Ballinger, MD · Sub-investigator
- Michael Blakley, MD · Sub-investigator
- Melissa Oliver, MD · Sub-investigator
- Martha Rodriguez, MD · Sub-investigator
- Rebecca Hetrick, MD · Sub-investigator
- Alexandra Thiesen, MD · Sub-investigator
Recruiting
The University of Iowa Hospitals and Clinics (University of Iowa Children's Hospital)
Iowa City, Iowa, United States
- Joehan Quach · Contact402-237-9936 joehan-quach@uiowa.edu
- Sandy Hong, MD · Principal investigator
- Polly Ferguson, MD · Sub-investigator
- Courtney Kremer, ARNP · Sub-investigator
- Scott Lieberman, MD, PhD · Sub-investigator
- Inna Powers, MD · Sub-investigator
Recruiting
University of Louisville Schoole of Medicine
Louisville, Kentucky, United States
- Kristin Klein · Contact502-588-4911 kristin.klein@louisville.edu
- Alexis Begezda, MD · Principal investigator
- Jacqueline Fabricius, MD · Sub-investigator
- Kenneth Schikler, MD · Sub-investigator
Recruiting
Tufts Medical Center
Boston, Massachusetts, United States
- Kiran Singh · Contact617-636-9197 Kiran.Singh@tuftsmedicine.org
- Trevor Davis, MD · Principal investigator
- Yujuan (Julia) Zhang, MD · Sub-investigator
Recruiting
Massachusetts General Hospital for Children
Boston, Massachusetts, United States
- Marc Natter · Contact617-726-2730 mnatter@mgh.harvard.edu
- Marc Natter, MD · Principal investigator
- Holly Rothermel, MD · Sub-investigator
- Deborah Rothman, MD · Sub-investigator
Recruiting
Boston Children's Hospital
Boston, Massachusetts, United States
- Kyle McBrearty · ContactKyle.McBrearty@childrens.harvard.edu
- Joyce Chang, MD · Principal investigator
- Olha Halyabar, MD · Sub-investigator
- Lauren Henderson, MD · Sub-investigator
- Pui Lee, MD, PhD · Sub-investigator
- Mindy Lo, MD, PhD · Sub-investigator
- Peter Nigrovic, MD · Sub-investigator
- Mary Beth Son, MD · Sub-investigator
- Fatma Dedeoglu, MD · Sub-investigator
- Margaret Chang, MD · Sub-investigator
- Liyoung Kim, MD · Sub-investigator
Recruiting
University of Michigan
Ann Arbor, Michigan, United States
- Jack Shemke · Contactshemkeja@med.umich.edu
- Smriti Mohan, MD · Principal investigator
- Atiye Dagci, MD · Sub-investigator
- Andrew Grim, MD · Sub-investigator
- Erin Janssen, MD · Sub-investigator
- Marianne Kerski, MD · Sub-investigator
- Jackie Madison, MD · Sub-investigator
- Anne Murphy, MD · Sub-investigator
- Jessica Turnier, MD · Sub-investigator
- Christine Wang, MD · Sub-investigator
Recruiting
Helen Devos Children's Hospital
Grand Rapids, Michigan, United States
- Genesis Pablo Mendoza · Contact616-391-1783 Genesis.PabloMendoza@corewellhealth.org
- Cory Stingl, MD · Principal investigator
- Khalid Abulaban, MD · Sub-investigator
- Elizabeth Kessler, MD · Sub-investigator
Recruiting
University of Minnesota
Minneapolis, Minnesota, United States
- Ellen Bruno · Contact612-301-1554 bruno033@umn.edu
- Colleen Correll, MD · Principal investigator
- Bryce Binstadt, MD · Sub-investigator
- Danielle Brueck, MD · Sub-investigator
- Patricia Hobday, MD · Sub-investigator
- Mona Riskalla, MD · Sub-investigator
- Shawn Mahmud, MD · Sub-investigator
- Nicholas Bhaskaran, DO · Sub-investigator
- Rebecca Wiersma, MD · Sub-investigator
Recruiting
Mayo Clinic
Rochester, Minnesota, United States
- Jennifer Kramer · Contact507-293-9555 Kramer.Jennifer2@mayo.edu
- Matthew Basiaga, DO · Principal investigator
- Amir Orandi, MD · Sub-investigator
- Dori Abel, MD · Sub-investigator
Recruiting
University of Mississippi Medical Center
Jackson, Mississippi, United States
- Kaylee Rhodes · Contactkdrhodes@umc.edu
- Yasmin Elzaki, MD · Principal investigator
Recruiting
Children's Mercy Hospital
Kansas City, Missouri, United States
- Ashley Lytch · Contact816-855-1957 amlytch@cmh.edu
- Ashley Cooper, MD · Principal investigator
- Leslie Favier, MD · Sub-investigator
- Emily Fox, MD · Sub-investigator
- Julia Harris, MD · Sub-investigator
- Cara Hoffart, DO · Sub-investigator
- Michael (Jamie) Holland, MD · Sub-investigator
- Maria Ibarra, MD · Sub-investigator
- Jordan Jones, DO · Sub-investigator
- Dani Schocken, MD · Sub-investigator
Recruiting
Saint Louis Children's Hospital
St Louis, Missouri, United States
- Kristen McDaniels · Contact314-273-9064 k.mcdaniels@wustl.edu
- Kevin Baszis, MD · Principal investigator
- Tarin Bigley, MD, PhD · Sub-investigator
- Leslie Fogel, MD, PhD · Sub-investigator
- Maleewan Kitcharoensakkul, MD · Sub-investigator
- Erica Schmitt, MD, PhD · Sub-investigator
- Claire Seper, NP · Sub-investigator
- Lance Peterson, MD, PhD · Sub-investigator
- Brad Ornstein, MD · Sub-investigator
Recruiting
Hackensack University Medical Center
Hackensack, New Jersey, United States
- Amanda Rodowicz · Contact551-996-3114 amanda.rodowicz@hmhn.org
- Jennifer Weiss, MD · Principal investigator
- Ginger Janow, MD · Sub-investigator
- Yukiko Kimura, MD · Sub-investigator
- Sivia Lapidus, MD · Sub-investigator
- Suzanne Li, MD · Sub-investigator
- Anna Carmela Gironella, MD · Sub-investigator
- Adam Mayer, MD · Sub-investigator
Recruiting
Goryeb Children's Hospital
Morristown, New Jersey, United States
- Marie Fox · Contact973-971-6308 marie.fox@atlantichealth.org
- Simona Nativ, MD · Principal investigator
- Sarah Paul, DO · Sub-investigator
Recruiting
Robert Wood Johnson Medical School
New Brunswick, New Jersey, United States
- Christina Varghese · Contact732-235-7570 chrisvar@rwjms.rutgers.edu
- Nandini Moorthy, MD · Principal investigator
- Dan Horton, MD · Sub-investigator
- Tatiana Borja, MD · Sub-investigator
Recruiting
The Pediatric Specialty Center at Saint Barnabas
West Orange, New Jersey, United States
- Marilyn Ricca · Contact973-322-6961 Marilyn.Ricca@rwjbh.org
- Elizabeth Chalom, MD · Principal investigator
- Marla Guzman, MD · Sub-investigator
Recruiting
Albany Medical College
Albany, New York, United States
- Suhas Ganguli · Contact518-262-6682 GangulS@amc.edu
- Suhas Ganguli · Principal investigator
- Liza Bermudez-Santiago, MD · Sub-investigator
- Cynthia Salvant, MD · Sub-investigator
- Barbara Ostrov, MD · Sub-investigator
Recruiting
Cohen Children's Medical Center of New York
Lake Success, New York, United States
- Ashley Machado · Contact516-472-3711 amachado3@northwell.edu
- Heather Walters, MD · Principal investigator
- Anne Eberhard, MSc · Sub-investigator
- Joyce Hui-Yuen, MD · Sub-investigator
- Patricia Lee, RN · Sub-investigator
- Beth Gottlieb, MD · Sub-investigator
- Zanab Mian, DO · Sub-investigator
Recruiting
Hospital for Special Surgery
New York, New York, United States
- Julia Klauss · Contact212-774-2703 klaussj@HSS.EDU
- Karen Onel, MD · Principal investigator
- Alexa Adams, MD · Sub-investigator
- Nancy Pan, MD · Sub-investigator
- Sarah Taber, MD · Sub-investigator
- Lauren Robinson, MD · Sub-investigator
Recruiting
Columbia University Medical Center
New York, New York, United States
- Marcela Arizabaleta · Contact212-342-2751 ma5005@cumc.columbia.edu
- Lisa Imundo, MD · Principal investigator
- Estee Ephron, CNP, CPNP-PC · Sub-investigator
Recruiting
Children's Hospital at Montefiore
New York, New York, United States
- Emily "Mimi" Gillies · Contactegillies@montefiore.org
- Dawn Wahezi, MD · Principal investigator
- Tamar Rubinstein, MD · Sub-investigator
- Tamara Tanner, MD · Sub-investigator
- Natalia Vasquez, MD · Sub-investigator
- Faith Ikalina, MD · Sub-investigator
Recruiting
University of Rochester
Rochester, New York, United States
- Jill Cross · Contact585-275-8991 Jill_Cross@URMC.Rochester.edu
- Christina Schutt, DO · Principal investigator
- Bethany Marston, MD · Sub-investigator
- Barbra Murante, NP · Sub-investigator
- Homaira Rahimi, MD · Sub-investigator
- Amy Vallee, NP · Sub-investigator
- Chrisana Pokorny, MD · Sub-investigator
- Michael Tomani, MD · Sub-investigator
- Chloe Swanger, MD · Sub-investigator
Recruiting
University of North Carolina at Chapel Hill
Chapel Hill, North Carolina, United States
- Carolina Pastrana-Medina · Contact919-564-5220 carol825@med.unc.edu
- Eveline Wu, MD · Principal investigator
- Laura Cannon, MD · Sub-investigator
- Leonard Kovalick, PNP · Sub-investigator
- Aliese Sarkissian, MD · Sub-investigator
- Caitlan Pinotti, MD · Sub-investigator
Recruiting
Levine Children's Hospital / Carolinas Medical Center
Charlotte, North Carolina, United States
- Crystal Reed · Contact704-770-6258 crystal.reed@advocatehealth.org
- Thomas Griffin, MD · Principal investigator
- Sheetal Vora, MD · Sub-investigator
Recruiting
Duke Children's Hospital & Health Center
Durham, North Carolina, United States
- Lynn Rodgers · Contact919-668-2953 lynn.rodgers@duke.edu
- Heather Van Mater, MD · Principal investigator
- Stephen Balevic, MD · Sub-investigator
- Mara Becker, MD · Sub-investigator
- Mary Buckley, MD · Sub-investigator
- Jeffrey Dvergsten, MD · Sub-investigator
- Rachel Randell, MD · Sub-investigator
- Rebecca Sadun, MD, PhD · Sub-investigator
- Yike Jiang, MD, PhD · Sub-investigator
Recruiting
Wake Forest Baptist Brenner Children's Hospital
Winston-Salem, North Carolina, United States
- Anya Brown · Contact336-716-5650 Anya.Brown@advocatehealth.org
- Onengiya Harry, MD · Principal investigator
- Brittany Richard, MMS · Sub-investigator
Recruiting
Sanford Health
Fargo, North Dakota, United States
- Josie Schahn · Contact701-234-3722 Josephine.Schahn@SanfordHealth.org
- Grant Syverson, MD · Principal investigator
- Chris Failing, MD · Sub-investigator
Recruiting
Akron Children's Hospital
Akron, Ohio, United States
- Jessica Kracker · Contactjkracker@akronchildrens.org
- Kate Cook, DO · Principal investigator
- Christine Bearer · Sub-investigator
- Christopher Costin · Sub-investigator
Recruiting
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States
- Megan Quinlan-Waters · Contact513-636-3644 Megan.Quinlan-Waters@cchmc.org
- Sheila Angeles-Han, MD · Principal investigator
- Alexi Grom, MD · Sub-investigator
- Jennifer Huggins, MD · Sub-investigator
- Daniel Lovell, MD · Sub-investigator
- Patricia Vega-Fernandez, MD · Sub-investigator
- Grant Schulert, MD, PhD · Sub-investigator
- Tracy Ting, MD · Sub-investigator
- Hermine Brunner, MD, MBA · Sub-investigator
- Ekemini Ogbu, MD · Sub-investigator
- Kara Schmidt, MD · Sub-investigator
Recruiting
Metrohealth Medical Center
Cleveland, Ohio, United States
- Rozina Aamir · Contact216-778-2628 raamir@metrohealth.org
- Hulya Bukulmez, MD · Principal investigator
- Nora Singer, MD · Sub-investigator
Recruiting
Cleveland Clinic Foundation
Cleveland, Ohio, United States
- Brittany Randall · Contact216-445-6405 RANDALB6@ccf.org
- Angela Robinson, MD · Principal investigator
- Elizabeth Brooks, MD · Sub-investigator
- Sirada Panupattanapong, MD · Sub-investigator
- Andrew Zeft, MD · Sub-investigator
- Laura Nedorezov, MD · Sub-investigator
Recruiting
Nationwide Children's Hospital
Columbus, Ohio, United States
- Rania Badran · Contact614-722-0741 Rania.Badran@nationwidechildrens.org
- Stacy Ardoin, MD · Principal investigator
- Shoghik Akoghlanian, MD · Sub-investigator
- Melissa Argraves, MD · Sub-investigator
- Samantha Coss, MD, PhD · Sub-investigator
- Kyla Driest, MD · Sub-investigator
- Ysabella Esteban, MD · Sub-investigator
- Alison Brittain, DO · Sub-investigator
- Wafa Ahmed, MD · Sub-investigator
- Edward Oberle, MD · Sub-investigator
- Vidya Sivaraman, MD · Sub-investigator
- Ivana Stojkic, MD · Sub-investigator
- Alysa Taxter, MD · Sub-investigator
- Dominique Cross, DO · Sub-investigator
- Elizabeth Murray, MD · Sub-investigator
- Laura Pratt, MD · Sub-investigator
Recruiting
Randall Children's Hospital at Legacy Emanuel
Portland, Oregon, United States
- Brenna Bogle · Contact503-413-3930 BBOGLE@LHS.ORG
- Daniel Kingsbury, MD · Principal investigator
- Andrew Lasky, MD · Sub-investigator
Recruiting
Penn State Children's Hospital
Hershey, Pennsylvania, United States
- Meredith Buckley · Contact717-531-0003 ext. 286546 mbuckley@pennstatehealth.psu.edu
- Timothy Hahn, MD · Principal investigator
- Ferris Troy Yu Asensi, MD · Sub-investigator
- Kim Hays, MD · Sub-investigator
- Lisa Scalzi, MD · Sub-investigator
- Andrew Kung, MD · Sub-investigator
Recruiting
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
- Griffin Stein · Contact267-426-8726 steing2@chop.edu
- Pamela Weiss, MD · Principal investigator
- Melissa Lerman, MD, PhD · Sub-investigator
- Scott Canna, MD · Sub-investigator
Recruiting
Saint Christopher's Hospital for Children
Philadelphia, Pennsylvania, United States
- Kimberly Nocella · Contact215-427-8460 Kimberly.Nocella@towerhealth.org
- Dana Toib, MD · Principal investigator
- Svetlana Lvovich, DO · Sub-investigator
Recruiting
Children's Hospital of Pittsburgh UPMC
Pittsburgh, Pennsylvania, United States
- Reagan Devine · Contact412-692-7567 deviner3@upmc.edu
- Margalit Rosenkranz, MD · Principal investigator
- Kathryn Torok, MD · Sub-investigator
- Abigail Printz, PA · Sub-investigator
Recruiting
Hasbro Children's Hospital
Providence, Rhode Island, United States
- Morgan Barnes · Contact401-444-5543 MBarnes3@brownhealth.org
- Ali Yalcindag, MD · Principal investigator
Recruiting
Medical University of South Carolina Children's Hospital
Charleston, South Carolina, United States
- Susannah Wakefield · Contact843-792-8317 wakefies@musc.edu
- Natasha Ruth, MD · Principal investigator
- Mileka Gilbert, MD · Sub-investigator
- Emily Vara, MD · Sub-investigator
Recruiting
Monroe Carrell Jr. Children's Hospital at Vanderbilt
Nashville, Tennessee, United States
- Brooke Fine · Contact615-322-4397 brooke.fine@vumc.org
- Thomas Graham, MD · Principal investigator
- Lisa Buckley, MD · Sub-investigator
- Anna Patrick, MD, PhD · Sub-investigator
- Jordan Jackson, DO · Sub-investigator
- Catherine Deffendall, MD · Sub-investigator
- Tyler Reese, MD · Sub-investigator
Recruiting
University of Texas Southwestern Medical Center Dallas
Dallas, Texas, United States
- Lenice Franklin · Contact214-559-8531 lenice.franklin@tsrh.org
- Elizabeth Sloan, MD · Principal investigator
- Stephanie Armendariz, ARNP · Sub-investigator
- Julie Fuller, MD · Sub-investigator
- Lorioen Nassi, MD · Sub-investigator
- Tracey Wright, MD · Sub-investigator
- Kristina Ciaglia, MD · Sub-investigator
- Simrat Morris, MD · Sub-investigator
- Heather Benham, RN, PNP · Sub-investigator
- Esraa Eloseily, MD · Sub-investigator
Recruiting
Baylor College of Medicine Pediatric Immunology Allergy Rheumatology
Houston, Texas, United States
- Monica Guevara · Contact832-824-1206 Monica.Guevara@bcm.edu
- Marietta DeGuzman, MD · Principal investigator
- Martha Curry, PNP · Sub-investigator
- Eyal Muscal, MD · Sub-investigator
- Hannah Bradfield, MD · Sub-investigator
- Cagri Toruner, MD · Sub-investigator
Recruiting
University of Utah Hospitals and Clinics (Primary Children's Hospital)
Salt Lake City, Utah, United States
- Sarah Wallgren · Contactsarah.wallgren@hsc.utah.edu
- Christi Inman, MD · Principal investigator
- Jake Anderson, MD · Sub-investigator
- Deborah Durkee, APRN · Sub-investigator
- Aimec Hersh, MD · Sub-investigator
- Karen James, MD · Sub-investigator
- Sara Stern, MD · Sub-investigator
- Katherine Thompson · Sub-investigator
- Peter Chiraseveenuprapund, MD · Sub-investigator
- Amanda Robinson, MD · Sub-investigator
- Kimberly Smith, MSN · Sub-investigator
- Erin Treemarcki, MD · Sub-investigator
Recruiting
University of Vermont Medical Center
Burlington, Vermont, United States
- Sage Hannon · Contactbarbara.hannon@med.uvm.edu
- Matthew Hollander, MD · Principal investigator
Recruiting
Children's Hospital of the King's Daughters
Norfolk, Virginia, United States
- Cassy Todd · Contact757-668-7176 Cassandra.Todd@CHKD.ORG
- Cassyanne Aguiar, MD · Principal investigator
- Emily Datyner, MD · Sub-investigator
Recruiting
Seattle Children's Hospital
Seattle, Washington, United States
- Albert Hsu · Contact206-987-2057 Albert.Hsu@seattlechildrens.org
- Kabita Nanda, MD · Principal investigator
- Eric Allenspach, MD, PhD · Sub-investigator
- Susan Canny, MD, PhD · Sub-investigator
- Sri Grevich, MD · Sub-investigator
- Kristen Hayward, MD · Sub-investigator
- Esi Morgan, MD · Sub-investigator
- Natalie Rosenwasser, MD · Sub-investigator
- Susan Shenoi, MBBS, MS · Sub-investigator
- Yongdong (Dan) Zhao, MD, PhD · Sub-investigator
- Stephen Wong, MD · Sub-investigator
- Erin Balay-Dustrude, MD · Sub-investigator
Recruiting
University of Wisconsin, American Family Children's Hospital
Madison, Wisconsin, United States
- Susy Cranley · Contact608-264-2200 cranley2@wisc.edu
- Dominic Co, MD, PhD · Principal investigator
- Judith Smith, MD, PhD · Sub-investigator
- Joni Dean, NP · Sub-investigator
Recruiting
Children's Hospital Of Wisconsin
Wauwatosa, Wisconsin, United States
- Erin Hammelev · Contact412-266-6352 ehammele@mcw.edu
- Sara Sabbagh, DO · Principal investigator
- Emma Austenfeld, MD · Sub-investigator
- James Bistolarides, MD · Sub-investigator
- Danielle Fair, MD · Sub-investigator
- Kaitlin Kirkpatrick, MD · Sub-investigator
- James Nocton, MD · Sub-investigator
- James Verbsky, MD, PhD · Sub-investigator
- Calvin Williams, MD, PhD · Sub-investigator
Recruiting
Yale University
New Haven, Connecticut, United States
Terminated
Nicklaus Children's Hospital
Miami, Florida, United States
Terminated
University of Illinois at Chicago
Chicago, Illinois, United States
Withdrawn
University of Kansas Medical Center
Kansas City, Kansas, United States
Terminated
Bay State Medical Center
Springfield, Massachusetts, United States
Terminated
West Michigan Rheumatology
Grand Rapids, Michigan, United States
Terminated
Saint Louis University School of Medicine
St Louis, Missouri, United States
Terminated
New York University Langone Medical Center
New York, New York, United States
Terminated
UH Rainbox Babies and Children's Hospital
Cleveland, Ohio, United States
Terminated

7 sites outside the US

University of Calgary - Alberta Children's Hospital
Calgary, Alberta, Canada
- Kissan Ghose · Contact403-955-5537 Kissan.Ghose@albertahealthservices.ca
- Marinka Twilt, MD, PhD · Principal investigator
- Nicole Johnson, MD · Sub-investigator
- Paivi Miettunen, MD · Sub-investigator
- Heinrike Schmeling, MD, PhD · Sub-investigator
- Rebeka Stevenson, MD · Sub-investigator
- Muhammad Dhalla, MD · Sub-investigator
- Jeanine McColl, MD, MPT · Sub-investigator
- John Storwick, MD · Sub-investigator
Recruiting
University of Manitoba - Children's Hospital of Manitoba
Winnipeg, Manitoba, Canada
- Sabhyam Kafle · Contact204-789-3888 skafle@chrim.ca
- Lily Lim, PhD · Principal investigator
Recruiting
IWK Health Center
Halifax, Nova Scotia, Canada
- Abigail Butler · Contact902-470-7414 Abbie.Butler@iwk.nshealth.ca
- Adam Huber, MD · Principal investigator
- Bianca A Lang, MD · Sub-investigator
- Elizabeth Stringer, MD · Sub-investigator
- Chelsea DeCoste, MD · Sub-investigator
Recruiting
The Hospital for Sick Children
Toronto, Ontario, Canada
- Ingrid Goh · Contact416-813-6372 ingrid.goh@sickkids.ca
- Brian Feldman, MD · Principal investigator
- Ali Alasmari, MD · Sub-investigator
- Lama Aleisa, MD · Sub-investigator
- Linda Hiraki, MD · Sub-investigator
- Ronald Laxer, MDCM · Sub-investigator
- Deborah Levy, MD · Sub-investigator
- Elizaveta Limenis, MD · Sub-investigator
- Edan Itzkovitz, MD · Sub-investigator
- Tom Beechinor, MD · Sub-investigator
- Giovanni Filocamo, MD · Sub-investigator
- Lynn Spiegel, MD · Sub-investigator
- Shirley Tse, MD · Sub-investigator
- Ruud Verstegen, MD · Sub-investigator
- Rae Yeung, MD, PhD · Sub-investigator
- Dilan Dissanayake, MD · Sub-investigator
- Andrea Knight, MD · Sub-investigator
- Greta Mastrangelo, MD · Sub-investigator
- Hamada Natour, MD · Sub-investigator
- Rebecca Quilty, MD · Sub-investigator
- Sonali Mitra, MD · Sub-investigator
- Yulia Vyzhga, MD · Sub-investigator
- Njood Nazer, MD · Sub-investigator
- Michael Vinker Shuster, MD · Sub-investigator
Recruiting
IRCCS Ospedale Pediatrico Bambino Gesu (OPBG)
Rome, Italy
- Denise Pires Marafon · Contact0039 06 6859 2801 demarafon@yahoo.com
- Fabrizio De Benedetti · Principal investigator
- Claudia Bracaglia · Sub-investigator
- Silvia Federici · Sub-investigator
- Antonella Insalaco · Sub-investigator
- Silvia Magni Manzoni · Sub-investigator
- Rebecca Nicolai · Sub-investigator
- Manuela Pardeo · Sub-investigator
- Emanuela Sacco · Sub-investigator
Not yet recruiting
Schneider Children's Medical Center of Israel
Petah Tikva, Israel
Terminated
San Jorge Children's Hospital
San Juan, Puerto Rico
Withdrawn

Long-term study of children and young people with rheumatic diseases

What this study is

Study details

Who can join

Monitoring & Endpoints

Study locations (82)

Study team

Duke University

Mara L Becker, MD, MSCE

Mary Beth Son, MD

Timothy Beukelman, MD, MSCE

Mara L Becker, MD, MSCE

Mary Beth Son, MD

Frequently asked questions