What this study is
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS.
Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info!
The FD/MAS Patient Registry: Your story powers research.
Study details
- Sponsor
- Tovah Burstein
- Conditions
- Fibrous Dysplasia · McCune Albright Syndrome · Mazabraud Syndrome
- Enrolling
- 600 people
- Starts
- 2016-10-31
- Est. completion
- 2028-10
- Record
- View on ClinicalTrials.gov ↗
Who can join
Sex ALLHealthy volunteers Not acceptedYou may qualify if
- Clinical diagnosis of fibrous dysplasia
- Clinical diagnosis of McCune-Albright syndrome
- Clinical diagnosis of Mazabraud's syndrome
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
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Study locations (1)
1 openTovah Burstein
Bethesda, Maryland, United States
- Tovah Burstein, MFA · Contact6033252489info@fibrousdysplasia.org
Recruiting
Study team
Sponsor
Tovah Burstein
Study ID Pro00018980.
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.