What this study is
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Study details
- Official title
- Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
- Sponsor
- University of Miami
- Conditions
- Amyotrophic Lateral Sclerosis · ALS-Frontotemporal Dementia · Primary Lateral Sclerosis · Progressive Muscular Atrophy
- Enrolling
- 1,200 people
- Starts
- 2018-02-15
- Est. completion
- 2034-06
- Record
- View on ClinicalTrials.gov ↗
Who can join
Age 18 Years and overSex ALLHealthy volunteers Not acceptedYou may qualify if
- Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
- Receiving care at a clinical center that uses Epic as its EHR.
- Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
You can't join if
- Inability to understand English and/or Spanish
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
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Study locations (11)
10 openUniversity of California, Irvine
Irvine, California, United States
- Pola Gaid · Contact657-233-1122polagaid@hs.uci.edu
- Namita Goyal, MD · Principal investigator
RecruitingStanford University
Palo Alto, California, United States
- Rabia Farooquee · Contact650-709-8735rfarooquee@stanford.edu
- Mawell Greene, MD · Principal investigator
RecruitingCalifornia Pacific Medical Center
San Francisco, California, United States
- Chow Saephanh · Contact415-600-3935SaephaC@cpmcri.org
- Jonathan Katz, MD · Principal investigator
RecruitingUniversity of Miami
Miami, Florida, United States
- Jessica Hernandez · Contact305-243-2345jph93@miami.edu
- Michael Benatar, MBChB, MS, DPhil · Principal investigator
RecruitingUniversity of Kansas Medical Center
Kansas City, Kansas, United States
- Osvaldo Plascencia · Contact913-945-9922oplascencia@kumc.edu
- Jeffrey Statland, MD · Principal investigator
RecruitingHennepin County Medical Center
Minneapolis, Minnesota, United States
- Daphne Fruchtman · Contact612-873-2607DFruchtman@hhrinstitute.org
- Samuel Maiser, MD · Principal investigator
RecruitingDuke University
Durham, North Carolina, United States
- Hailey Zampa · Contacthailey.zampa@duke.edu
- Xiaoyan Li · Principal investigator
RecruitingWake Forest University
Winston-Salem, North Carolina, United States
- Lauren Richmond · Contact336-716-9632lauren.richmond@advocatehealth.org
- James Caress, MD · Principal investigator
RecruitingProvidence Health & Services
Portland, Oregon, United States
- Angela Phan · Contactangelina.phan@providence.org
- Nicholas Olney, MD · Principal investigator
RecruitingUniversity of Texas San Antonio Health Science Center
San Antonio, Texas, United States
- Randee Kent-Baron · Contactkentbaron@uthscsa.edu
- Carlayne Jackson, MD · Principal investigator
RecruitingColumbia University
New York, New York, United States
Active, not recruiting
Study team
Sponsor
University of Miami
Study ID 20170785
Principal investigator
Michael Benatar, MBChB, MS, DPhil
University of Miami
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.