What this study is
African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings.
Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.
What's being tested
- AA Communities Speak to Healthcare Professionals
Intervention · BEHAVIORAL
The training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and implicit bias recognition and management training to mitigate bias in goals of care communication.
Study details
- Official title
- African Americans (AA) Communities Speak: Partnering With AA in the North and South to Train Palliative Care Clinicians to Address Interpersonal and Systemic Racism and Provide Culturally Aligned Care.
- Sponsor
- University of Alabama at Birmingham
- Conditions
- Healthy Aging · Health Knowledge, Attitudes, Practice · Social Responsibility · Care Eliciting Behavior · Racism, Systemic
- Enrolling
- 60 people
- Starts
- 2025-02-27
- Est. completion
- 2028-07
- Design
- Single-blind, randomized, parallel groups
- Record
- View on ClinicalTrials.gov ↗
Who can join
Sex ALLHealthy volunteers AcceptedYou may qualify if
- Aim 1.1 Person with serious Illness:; Self-identified as African American (i.e., born, raised, and lived primarily in the US); Non-Hispanic or Latino; Age ≥60 years; English-speaking; Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease); Callahan Six-Item Screener score ≥4; Able to complete baseline surveys. Bereaved family member:; Self-identified as African American (i.e., born, raised, and lived primarily in the US); Non-Hispanic or Latino; Age ≥60 years; English-speaking; Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease); Callahan Six-Item Screener score ≥4; Able to complete baseline surveys.
- Aim 1.2 Bereaved Family member:; Self-identified as African American (i.e., born, raised, and lived primarily in the US); Non-Hispanic or Latino; Age ≥60 years; English-speaking; Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease); Callahan Six-Item Screener score ≥4; Able to complete baseline surveys Pastors:; Self-identifying as African American; White, Non-Hispanic or Latino; Sged ≥18 years old.
- Aim 3 Clinician eligibility:; Practice at a University of Alabama at Birmingham (UAB) or Montefiore/Einstein site that provides care to patients eligible for outcomes surveys; At least 3 months of clinical practice at the study site prior to the intervention training to measure pre-intervention patient surveys
You can't join if
- Person with serious illness: -Cannot be receiving hospice care Bereaved Family Member: -Cannot be a paid "sitter"
- Lack of at least 3 months of clinical practice at the study site prior to the intervention training.
- Currently receiving hospice care. Family member eligibility:; Age ≥ 18 years; English-speaking; Community-dwelling; Unpaid care provider of a person with a serious illness.
- Cannot be a paid "sitter".
- Self-identified as African American (i.e., born, raised, and lived primarily in the US)
- Non-Hispanic or Latino, 3. age ≥60 years
- English-speaking
- Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
- Callahan Six-Item Screener score ≥4
- Able to complete baseline surveys.
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
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Study locations (2)
2 openUAB
Birmingham, Alabama, United States
- Ronit Elk, PhD · Contact205.996.1702relk@uabmc.edu
- Tametria Heard, PhD · Contact205.934.7905tvheard@uabmc.edu
- Ronit Elk, PhD · Principal investigator
RecruitingAlbert Einstein/Montefiore
The Bronx, New York, United States
- Elizabeth Chuang, MD · Contact718-920-4630Echuang@montefiore.org
- Elizabeth Chuang, MD · Sub-investigator
Recruiting
Study team
Sponsor
University of Alabama at Birmingham
Study ID IRB300007677
Principal investigator
Jennifer Tjia, MD, MSCE
University of Massachusetts, Worcester
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.