What this study is
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.
Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Study details
- Official title
- Synovial Sarcoma Registry and Biospecimen Repository
- Sponsor
- Children's Hospital of Philadelphia
- Conditions
- Synovial Sarcoma
- Enrolling
- 1,000 people
- Starts
- 2023-06-12
- Est. completion
- 2033-06
- Record
- View on ClinicalTrials.gov ↗
Who can join
Sex ALLHealthy volunteers Not acceptedYou may qualify if
- Males or females of any age
- Reported diagnosis of synovial sarcoma
- Informed consent from subject (aged ≥18 years) or parent/guardian
You can't join if
- Individuals with sarcomas that do not fit the definition of those considered for this registry
- Individuals who are unwilling to participate
- Individuals who are unwilling or unable to provide written consent
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
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Study locations (1)
1 openChildren's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States
- Lauren Gutstein · Contact267-425-2029gutsteinl1@chop.edu
Recruiting
Study team
Sponsor
Children's Hospital of Philadelphia
Study ID 23-021012
Principal investigator
Theodore Laetsch, MD
Children's Hospital of Philadelphia
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.