Von Hippel Lindau DiseaseGeneticsRare disease
What this study is
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Study details
- Sponsor
- M.D. Anderson Cancer Center
- Conditions
- Von Hippel Lindau Disease
- Enrolling
- 125 people
- Starts
- 2023-08-24
- Est. completion
- 2026-12-31
- Record
- View on ClinicalTrials.gov ↗
Who can join
Age 18 Years and overSex ALLHealthy volunteers Not acceptedYou may qualify if
- Presence of genetic confirmation or clinical criteria consistent with vHL disease.
- Ability to understand and the willingness to sign a written informed consent document.
You can't join if
- Patients with psychiatric illness/social situations that would limit compliance with study requirements.
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
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1
Study locations (1)
1 openM D Anderson Cancer Center
Houston, Texas, United States
- Eric Jonasch, MD · Contact713-563-7232ejonasch@mdanderson.org
- Eric Jonasch, MD · Principal investigator
Recruiting
Study team
Sponsor
M.D. Anderson Cancer Center
Study ID 2022-0665
Principal investigator
Eric Jonasch, MD
ejonasch@mdanderson.org
Have questions? The contacts above can answer them before you apply.
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.