What this study is
This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end-of-life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low-quality end-of-life care as well as recommendations for potential future interventions.
What's being tested
- Non-Interventional Study
Intervention · OTHER
Non-interventional study
Study details
- Official title
- Quality of End-of-Life Care for Children With Cancer: A COG Groupwide Observational Study
- Sponsor
- Children's Oncology Group
- Conditions
- Childhood Hematopoietic and Lymphatic System Neoplasm · Childhood Malignant Solid Neoplasm
- Enrolling
- 2,425 people
- Starts
- 2026-07-31
- Est. completion
- 2031-01-31
- Record
- View on ClinicalTrials.gov ↗
Who can join
Age 18 Years and overSex ALLHealthy volunteers AcceptedYou may qualify if
- Index Child (COG Registered Patient):; Must be deceased; < 18 years old at time of death; Diagnosed with any oncologic condition; History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild; Note: history of treatment on a COG therapeutic trial is not required; Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death Bereaved Parent(s):; Must be a parent, legal guardian, or caregiver (biological or non-biological) of an eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact (e.g., from the APEC14B1 Part B Consent)
- Self-reported confirmation of familiarity with the care received by the Index Child in the last month of their life
- Bereaved parent must understand English or Spanish (written and/or spoken)
- Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact study record or must be referred by one of the APEC14B1 contacts
- Bereaved parent must be >= 18 years old at the time of ALTE24C1 study enrollment Regulatory Requirements:; Bereaved parent must provide verbal or implied informed consent; For all participants, all institutional, FDA, and NCI requirements for human studies must be met
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
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Study locations (28)
28 openChildren's Hospital of Alabama
Birmingham, Alabama, United States
- Contact205-638-9285oncologyresearch@peds.uab.edu
- Emily E. Johnston · Principal investigator
RecruitingArkansas Children's Hospital
Little Rock, Arkansas, United States
- Contact501-364-7373
- Michael W. Bishop · Principal investigator
RecruitingKaiser Permanente-Oakland
Oakland, California, United States
- Contact877-642-4691Kpoct@kp.org
- Aarati V. Rao · Principal investigator
RecruitingAlfred I duPont Hospital for Children
Wilmington, Delaware, United States
- Contact302-651-5572Allison.bruce@nemours.org
- Vibhuti Agarwal · Principal investigator
RecruitingGolisano Children's Hospital of Southwest Florida
Fort Myers, Florida, United States
- Contact239-343-5333molly.arnstrom@leehealth.org
- Emad K. Salman · Principal investigator
RecruitingMemorial Regional Hospital/Joe DiMaggio Children's Hospital
Hollywood, Florida, United States
- Contact954-265-1847OHR@mhs.net
- Iftikhar Hanif · Principal investigator
RecruitingNemours Children's Clinic-Jacksonville
Jacksonville, Florida, United States
- Contact302-651-5572Allison.bruce@nemours.org
- Vibhuti Agarwal · Principal investigator
RecruitingNemours Children's Hospital
Orlando, Florida, United States
- Contact302-651-5572Allison.bruce@nemours.org
- Vibhuti Agarwal · Principal investigator
RecruitingNemours Children's Clinic - Pensacola
Pensacola, Florida, United States
- Contacthelpdesk@childrensoncologygroup.org
- Jeffrey H. Schwartz · Principal investigator
RecruitingChildren's Healthcare of Atlanta - Arthur M Blank Hospital
Atlanta, Georgia, United States
- Contact404-785-0232Olivia.Floyd@choa.org
- Jonathan S. Ebelhar · Principal investigator
RecruitingAugusta University Medical Center
Augusta, Georgia, United States
- Contact706-721-2388ga_cares@augusta.edu
- Colleen H. McDonough · Principal investigator
RecruitingBlank Children's Hospital
Des Moines, Iowa, United States
- Contact515-241-8912samantha.mallory@unitypoint.org
- Samantha L. Mallory · Principal investigator
RecruitingSinai Hospital of Baltimore
Baltimore, Maryland, United States
- Contact410-601-9083
- Jason M. Fixler · Principal investigator
RecruitingCorewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital
Grand Rapids, Michigan, United States
- Contact616-391-1230crcwm-regulatory@crcwm.org
- Kathleen Y. Butler · Principal investigator
RecruitingBronson Methodist Hospital
Kalamazoo, Michigan, United States
- Contact616-391-1230crcwm-regulatory@crcwm.org
- Kathleen Y. Butler · Principal investigator
RecruitingChildren's Mercy Hospitals and Clinics
Kansas City, Missouri, United States
- Contact816-302-6808COGResearchGroup@cmh.edu
- Keith J. August · Principal investigator
RecruitingRenown Regional Medical Center
Reno, Nevada, United States
- Contact775-982-5050Renown-CRD@renown.org
- Seema L. Rao · Principal investigator
RecruitingAlbany Medical Center
Albany, New York, United States
- Contact518-262-5513
- Lauren R. Weintraub · Principal investigator
RecruitingState University of New York Upstate Medical University
Syracuse, New York, United States
- Contact315-464-5476
- Melanie A. Comito · Principal investigator
RecruitingMontefiore Medical Center - Moses Campus
The Bronx, New York, United States
- Contact718-379-6866eskwak@montefiore.org
- Alice Lee · Principal investigator
RecruitingRainbow Babies and Childrens Hospital
Cleveland, Ohio, United States
- Contact216-844-5437
- Duncan S. Stearns · Principal investigator
RecruitingChildren's Hospital of Pittsburgh of UPMC
Pittsburgh, Pennsylvania, United States
- Contact412-692-8570jean.tersak@chp.edu
- Jean M. Tersak · Principal investigator
RecruitingRhode Island Hospital
Providence, Rhode Island, United States
- Contact401-444-1488
- Bradley DeNardo · Principal investigator
RecruitingDell Children's Medical Center of Central Texas
Austin, Texas, United States
- Contact512-628-1902TXAUS-DL-SFCHemonc.research@ascension.org
- Shannon M. Cohn · Principal investigator
RecruitingUT Southwestern/Simmons Cancer Center-Dallas
Dallas, Texas, United States
- Contact214-648-7097canceranswerline@UTSouthwestern.edu
- Ksenya Shliakhtsitsava · Principal investigator
RecruitingUniversity of Virginia Cancer Center
Charlottesville, Virginia, United States
- Contact434-243-6303uvacancertrials@hscmail.mcc.virginia.edu
- Brian C. Belyea · Principal investigator
RecruitingProvidence Sacred Heart Medical Center and Children's Hospital
Spokane, Washington, United States
- Contact800-228-6618HopeBeginsHere@providence.org
- Judy L. Felgenhauer · Principal investigator
RecruitingSaint Vincent Hospital Cancer Center Green Bay
Green Bay, Wisconsin, United States
- Contact920-433-8889WI_research_admin@hshs.org
- Catherine A. Long · Principal investigator
Recruiting
Study team
Sponsor
Children's Oncology Group
Study ID ALTE24C1
Principal investigator
Emily E Johnston
Children's Oncology Group
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.