What this study is
The purpose of this study is to adapt a goals of care communication tool, called Jumpstart, for adolescent and young adult cancer patients (also called AYAC). Goals of care conversations are discussions between patients and their doctors about the patient's wishes, values, and priorities for their care. The Jumpstart tool was created for adult patients to help start these conversations during doctor's appointments. This study will adapt the tool so that it works better for adolescent and young adult patients with cancer. We will also look at whether the tool is practical and useful for AYAC and for medical doctors who see or treat AYAC patients.
What's being tested
- Jumpstart GOCC intervention
Intervention · OTHER
1. Patient-facing survey; 2. GOCC tips sheet for the patient; 3. GOCC guide for providers
Study details
- Official title
- Adaptation of an Evidence-based Goals of Care Communication Intervention for Adolescent and Young Adult Cancer Patients (AYAC)
- Sponsor
- Memorial Sloan Kettering Cancer Center
- Conditions
- Cancer
- Enrolling
- 118 people
- Starts
- 2026-09-25
- Est. completion
- 2028-09-25
- Design
- Open-label, randomized, parallel groups
- Record
- View on ClinicalTrials.gov ↗
Who can join
Age 18 Years – 39 YearsSex ALLHealthy volunteers Not acceptedYou may qualify if
- Patient (All Aims)
- Between ages 18-39;
- Has a diagnosis of Stage III or IV cancer as per clinician note in the EMR;
- English as their primary language in the EMR;
- Can independently consent to study procedures without a surrogate or legally authorized representative;
- MSK treating oncologist answers "no" to the question, "Would you be surprised if this patient died within the next year?"
- AIMS 2 & 3 ONLY: Did not participate in previous aims Clinician (All Aims)
- Are 18 or older;
- Are an MSK oncologist who sees AYAC patients
- AIMS 2 & 3 ONLY: Did not participate in previous aims
You can't join if
- Clinician (Aims 1 & 2): none
- Patient (Aim 3 ONLY): none
Sign in and we'll check these against your records.Full criteria on ClinicalTrials.gov ↗
Loading treatment details…
Study locations (7)
7 openMemorial Sloan Kettering at Basking Ridge (All protocol activities)
Basking Ridge, New Jersey, United States
Memorial Sloan Kettering Monmouth (All Protocol Activities)
Middletown, New Jersey, United States
Memorial Sloan Kettering Bergen (All Protocol Activities)
Montvale, New Jersey, United States
Memorial Sloan Kettering Suffolk - Commack (All Protocol Activities)
Commack, New York, United States
Memorial Sloan Kettering Westchester (All Protocol Activities)
Harrison, New York, United States
Memorial Sloan Kettering Cancer Center
New York, New York, United States
Memorial Sloan Kettering Nassau (All Protocol Activities)
Uniondale, New York, United States
Study team
Sponsor
Memorial Sloan Kettering Cancer Center
Study ID 26-339
Principal investigator
Meghan McDarby, PhD
Memorial Sloan Kettering Cancer Center
Frequently asked questions
The sponsor hasn't published answers to common questions for this trial.